Tuesday, November 16, 2010
I have been reading a bunch of emails lately about how parents show concern time and again and the Pediatritions are not worried. I know I felt like maybe I was crazy. Coleman was not as big as Carter was at the same ages and I tried not to compare but Im glad I did. Carter is big for his age and Coleman is small for his age. I wish mothers intuition was conciderd more. That gut feeling you get when they are different than their peers. I wish we we not concidered worriers or overconcerned and were taken seriously. I have an excellent pediatrition who just wasn't concerned enough for me. He is right Coleman is fine, hes just short but I wanted answers and solutions not to wait and wait. Waiting does help if there is nothing wrong but what is early intervention is crutial?? What if the months you waited could have made a difference?? We dont have a degree in medicine but we know our kids. Please,Listen.
Wednesday, November 10, 2010
Coleman has had so many changes(for the good) in the past three months. It started when he got his tonsils out in August, and then going to school and being in a structures environment. He has always been behind in his speech, which seems about normal for kids with hypochondroplasia. I was wondering if others with Hypochondroplasia have experienced speech problems or delays also? Coleman qualified to get into PreK at our local elementary school and his therapist are there in the school. He qualified for Speech Therapy and APE (Adapted Phy. Edu.) and is in a regular ed. class. He is vocalizing his needs and wants to friends and teachers. He is speaking so well now, I rarely have to ask "what did you say" He is also showing interest in books and school, where he was not. I think it is a combination of tonsils out and school making more confidence.
Saturday, November 6, 2010
I love my life.
James 1:2-4 says;
"Consider it all joy, my brethren, when you encounter various trials, knowing that the testing of your faith produces endurance. And let endurance have its perfect result, so that you may be perfect and complete, lacking in nothing."
I believe God has a purpose for our family, weather or not the growth hormones work, weather or not the kids struggle. He has a plan...He is sufficient. Life is hard enough, why go through it with out Christ?
My wonderful family lives in Hot Springs,AR and we live in Louisiana. Its about 3hrs to there house and so traveling is not bad...but traveling with the growth hormone presents obstacles, like keeping it cold or even just remembering it. I know this sounds petty, but when the circumstances change I forget to give it to him sometimes. I do not want to ever forget it but in all the commotion of Christmas and family and sleep deprivation I do. Grrrrrrrr.
Thursday, November 4, 2010
I was thinking about making a T-shirt for us and our kids. I see T's for everything to make people more aware of this or that, why not Hypochondroplasia? I would like it to say,"I'm unique, just like everybody else" I saw this quote somewhere and loved it. Because not only does God make everyone different and unique but we all have ticks and hangups even if we are "normal". I wanted you opinion or creative input. It could tie us together no matter where we lived. I love educating people about autism or hypochondroplasia because it makes people more tolerant across the board.
Let me know???