Lost GH Found perspective

Well, I knew this time might come but it is still a little disappointing. We got a call from Coleman's endocrinologist a few weeks ago that the insurance company had denied three appeal letters for Coleman's Growth Hormones. He will not receive them anymore. We are thrilled that he got them when he did and for as long as he did. Thank you so much for all the questions and prayers. Cocos dr said there was/is a hypochondroplasia GH study in France and that 1/3 showed some progress. It was not definitive enough evidence to say it was a safe bet for insurances to give to them though. She said that this group that did the testing believes that some genes are more receptive that others and that's why 1/3 showed improvement. If you have any questions feel free to ask. I may not know the answer but I'll try.
I have to admit I am disappointed but not discouraged. I believe God has a specific life in mind for Coleman and myself. I also believe that this is Gods will because I'm totally at peace with this decision. If coco had not gotten the GH shots I might not have gotten to meet some of you and I might not have gotten to share Christ with you. Thanks again!

Excuse me? Uh huh

It is spring break this week in Louisiana so we did a few fun things. Scarlett's first birthday, visiting grandparents and great pop in Arkansas and went camping in north Louisiana. It's a place called Bodcau and it's quiet with a playground and bike roads so the kids can have a blast. Well it was mid afternoon and I noticed all the kids playing around the campfire but Coleman so I asked his best friend/cousin Georgia where he was. That's when she told me two teenagers had told him he was too short and laughed. Being a Christ follower I took a deep breath and asked God to calm my aching heart. Of course Coleman would rather die than tell me what was said. He's so independent and strong but I'm NOT! I marched up into the woods and asked politely as I could "did you say something to my son?" Which one replies "we never said anything about height!" Uh huh yep I hadn't yet either sugar!! So I say " well he has a form of dwarfism and is sensitive when two teenagers put him down, next time you speak you should think first" as I turned around their mom is starting to get out of the tent. I told her I was sorry to confront them but they had an opportunity to make an impression on my child but the chose to hurt him. The mom was polite and said she'd take care of them. I never do things like that but the quite sadness oozing off Coleman was too much. Don't mess with any of my babies!

Coleman and is cousin. Same age

What? What did you say?

Coleman has been asking "what?" After everything we say  lately. I thought at first he wasn't listening or he was trying to get under my skin but I don't think that's the case. I called his speech therapist and she noticed the trouble too. I also noticed he's been reading lips. He fails the school hearing test every year but when we go to the official hearing test he passes. So anyway to to make a long story short, we are go to  the evaluation center to get some more tests done. He is seven years old now, so would the hypochondroplasia hearing loss show up now? Does anyone else have experience with this? Let me know if you have! I love having my hypos support from other moms and dads.

Who R U

Coleman  is heading back to see Dr. Flint in Lafayette, LA on Monday, January 6,2013. He is doing good. I will let everyone know what she says about the neutropin growth hormones and what she thinks his progress is .
He is doing well, in school, in health and emotionally. He asked this year about why he was shorter, why he had to take shots, why it had to be him. I told him like I tell my kids all the time. Everyone has something they have to overcome or something that makes their life harder. My oldest son Carter is autistic and I have ADD, Coleman has hypochondroplasia. I wish I could take their pain away sometimes but if I did I would rob them of who they will be. I have freak out moments where I cry and ask God my savior, my friend, my Lord why, why us? I know in my heart he has and will be an encouragement to other kids. What we see as weakness God uses for his glory. Coco is a tough little thing and I wouldn't change him for the world.

My info

My email is randomkcvp@yahoo.com My FB is Kristen Carter vining Pratt

Empathize exercise

I have not been in any group or anything for kids with special needs kids. But lately I've noticed that when im with a parent with a kid that has autism or dwarfism I don't feel as lonely. I like talking to someone that's not looking at me with pity or awe but just two people having a regular conversation. I have been so proud of both my boys. School is not easy, sports are not easy, big crowds are not easy. They adjust and move on. I feel mean sometimes because I push them to be so independent and expect them to overcome hurt and unfairness in life. God has been motivating me to look for hurting parents with special needs kids and just Empathize. Just let them know they are not alone. Life can be hard and people that don't mean to hurt us do. A look. A pat on the head. A hint that your not quite like everyone else. And when it's our kids... Coleman's award assembly was last week. It felt like Everyone got an award but him. He looked at me and said "I'm not good at school. Why did you come?" Hurt!! I told him I didn't care about all As or awards but I cared about effort and attitude and I was there because I was proud to be his mom. My challenge to you, to me, to my kids is to look into people's eyes. Look into their lives and be sympathetic, listing, hugging,empathizing,and loving. You never know what your love could mean to that person.

when he was born

2 days old