Sinking

So both of my boys have been in Swimming Leasons for 6 months. Carter loves the water, he should have been a fish. Coleman does not like the water. He prefers to lay out in the sun as the opposed to the pool. But it is January at the indoor swim school and Coleman is doing better. He kicks and moves his tiny little arms as fast as he can. I'm so proud of him, he is swimming half the pool. The only problem is he can not lift his head to catch a breath. He tries but can not seem to lift it above the water. I find myself straining my neck to breath for him. I can not help but smile at his wide eyes when his teacher helps him up. He improves every week, and it is so good for his muscles and confidence. I love The Swim School and all they do. Maybe one week instead of sinking he swim...

I'm done!!

We went for a check up at the pediatritions office the other day and the doctor asked, "Coleman how are your shots?" to which my sweet son answered " I don't want to grow, I'm done"

Growth Hormone shots, AKA superman shots

We started CoCo's growth hormones three weeks ago. We call them his Superman shots. He is doing very well. I feel so much pressure on me, to have things recorded properly or give the shot right. I ask God for patience and confidence for myself that Im doing the right things for my kids. Coleman is so tough, so independent. I cried the other night after giving him a shot. He had not fussed or complained, but after he fell asleep, hot tears ran down my face as I wispered, "Im so proud of you Coleman Thomas". I hope I can say at the end of the day, I did all I could do for him. I still get nervous at the thought of being incharge of my beautiful boys lives , Coleman espically. I have a peace that God chose me to be their moms and that He trust in me and I in Him. I discovered once that, faith isn't faith if we know where we are going to land. So, I blindly trust Gods plan for us.

First day of shots

So today was Colemans first Groweth hormones shot. Nutrapin is the company we use, they sent a very nice nurse out today to show us how to use the needles and shots and suprizingly it was easy. Coleman did so good, he cried a little but had no tears. Once he recieved his kisses he was fine, hershey kisses that is. I am a little nervous keeping track of everything but not giving the shot. Pray that God gives me the capability to comprehend the details and the patience with myself to do this every night. God has been so faithful, we know He is faithful wether CoCo grows or not, whether or not we got the drug or not. Im excited to start this process!!

Groweth Hormones

So we have been waiting and praying for the groweth Hormones for over a year and now they are sitting in my refrigerator. I have tried to tell CoCo they the shot will help him grow and he says "I not wanna grow" He just doesn't want a shot. We have to be professionally trained by a nurse to administer the groweth hormone shots so again were waiting. Im a little nervous about all of the responsibility but Im ready to give Coleman a better chance at life. Its funny how simple life is and how complicated. I know my Nana prayed for years for this decision about what was the best for CoCo.

get together?

Does anyone know of a group that gets together or contact each other specifically dealing with hypochondraplasia?

Growth Hormones

We are in the process of trying to get Coleman on growth hormone therapy. I have been to see our geneticist, Dr.Harold Chen at LSU medical Center in Shreveport, LA. Trying to get involved in a medical trial is confusing and difficult but financially we can not do this otherwise. If anyone has been through growth hormone therapy that has hypochondroplasia please contact me. Or if you are in a drug company that can help Coleman and our family know the right thing to do.