my boys 2012

my boys 2012
Coleman is 6 Carter is 7

What is hypochondroplasia?

Hypochondroplasia is a form of short-limbed dwarfism. This condition affects the conversion of cartilage into bone (a process called ossification), particularly in the long bones of the arms and legs. Hypochondroplasia is similar to another skeletal disorder called achondroplasia, but the features tend to be milder.

All people with hypochondroplasia have short stature. The adult height for men with this condition ranges from 138 centimeters to 165 centimeters (4 feet, 6 inches to 5 feet, 5 inches). The height range for adult women is 128 centimeters to 151 centimeters (4 feet, 2 inches to 4 feet, 11 inches).

People with hypochondroplasia have short arms and legs and broad, short hands and feet. Other characteristic features include a large head, limited range of motion at the elbows, a sway of the lower back (lordosis), and bowed legs. These signs are generally less pronounced than those seen with achondroplasia and may not be noticeable until early or middle childhood. Some studies have reported that a small percentage of people with hypochondroplasia have mild to moderate intellectual disability or learning problems, but other studies have produced conflicting results.

Me and Carter and Coleman

Me and Carter and Coleman
easter 2011

My Weather

Carter 5yrs /Coleman 3yrs

Carter 5yrs /Coleman 3yrs
2009

Friday, January 8, 2010

Pumped

I feel so pumped up by all the responses Iv'e gotten these past few days. I feel like I was all alone and now Im not anymore. Mothers going through the same gut feelingsI have and having enough gumption to fight for their kids like I do. I am so excited right now. Ironically we just got the shipment from UPS (bless there hearts) that I waited for from 8:00 this morning till it came at 6:30. I honestly was mad because I had to wait, IM PATHETIC. I was nice to the freezing UPS man who showed up at my door. So the box came in and Coleman said "dat my suberman sho" awe... so sweet. I am so blessed to have my friends and family that encourage and help me through the good and the not so good times. My mother and my mother in law have been such a support system both in their own ways. Thank you

Hes's Three!!!

I feel like a broken record sometimes. I feel the need to explain that Coleman is three, he does not need to be carried, or fed, or spanked with a feather. People at the grocerystore or relatives that are not around all of the time treat him younger. You know what makes me even more mad at this fact??? I treat him different too. I feel like life is hard enough for him, isn't it? I try to be fair ,I try to make him do for himself. Then I second guess myself, can he pull that chair on his own? can he take off his clothes by himself?does he really need to walk all the way? Then I stop and think of what best for him, not what makes his life easier for now. He is soooo independent and energized, I know in my soul to push him is to better him. So next time you feel like helping Coleman, HE IS 3!!!

Thursday, January 7, 2010

Sinking


So both of my boys have been in Swimming Leasons for 6 months. Carter loves the water, he should have been a fish. Coleman does not like the water. He prefers to lay out in the sun as the opposed to the pool. But it is January at the indoor swim school and Coleman is doing better. He kicks and moves his tiny little arms as fast as he can. I'm so proud of him, he is swimming half the pool. The only problem is he can not lift his head to catch a breath. He tries but can not seem to lift it above the water. I find myself straining my neck to breath for him. I can not help but smile at his wide eyes when his teacher helps him up. He improves every week, and it is so good for his muscles and confidence. I love The Swim School and all they do. Maybe one week instead of sinking he swim...

Wednesday, January 6, 2010

I'm done!!

We went for a check up at the pediatritions office the other day and the doctor asked, "Coleman how are your shots?" to which my sweet son answered " I don't want to grow, I'm done"

Growth Hormone shots, AKA superman shots


We started CoCo's growth hormones three weeks ago. We call them his Superman shots. He is doing very well. I feel so much pressure on me, to have things recorded properly or give the shot right. I ask God for patience and confidence for myself that Im doing the right things for my kids. Coleman is so tough, so independent. I cried the other night after giving him a shot. He had not fussed or complained, but after he fell asleep, hot tears ran down my face as I wispered, "Im so proud of you Coleman Thomas". I hope I can say at the end of the day, I did all I could do for him. I still get nervous at the thought of being incharge of my beautiful boys lives , Coleman espically. I have a peace that God chose me to be their moms and that He trust in me and I in Him. I discovered once that, faith isn't faith if we know where we are going to land. So, I blindly trust Gods plan for us.

Wednesday, December 16, 2009

First day of shots

So today was Colemans first Groweth hormones shot. Nutrapin is the company we use, they sent a very nice nurse out today to show us how to use the needles and shots and suprizingly it was easy. Coleman did so good, he cried a little but had no tears. Once he recieved his kisses he was fine, hershey kisses that is. I am a little nervous keeping track of everything but not giving the shot. Pray that God gives me the capability to comprehend the details and the patience with myself to do this every night. God has been so faithful, we know He is faithful wether CoCo grows or not, whether or not we got the drug or not. Im excited to start this process!!

Friday, December 11, 2009

Groweth Hormones


So we have been waiting and praying for the groweth Hormones for over a year and now they are sitting in my refrigerator. I have tried to tell CoCo they the shot will help him grow and he says "I not wanna grow" He just doesn't want a shot. We have to be professionally trained by a nurse to administer the groweth hormone shots so again were waiting. Im a little nervous about all of the responsibility but Im ready to give Coleman a better chance at life. Its funny how simple life is and how complicated. I know my Nana prayed for years for this decision about what was the best for CoCo.

Coleman

Coleman
spring 2011

Coleman

Coleman
2008