Little pieces of heaven

I believe that life is tough but we choose how to live our lives. Happiness is a choce we make. God gives us people in our lives to help us get through the tough days. Dr. Chen has been one of the blessings in this whole process. He diagnosed Coleman with hypochondroplasia when evryone else made me feel like I was crazy.He not only diagnosed/ followed up and gave me more information every visit. He referd CoCo to specialist and new medications. Thank you God for Dr. Chen. Colemans teachers, Robin this APE theripist, Elaine Duke, The swim school, my mom, Granny, and more people than I have room on this page support me everyday to make things easier on us. Thank you for your love.

Snorzzzz!

OK so I thought Coleman was just snoring a little until he had a fever the other night and spent the night in my bed. Snoring is not a loud enough name. He sounds like he is missing a lung or a nostril. Snaaaagggg, noiknoik, aaahhh!. He snores All night and it is giving him sleep apnea and he is waking me up. Does anyone else with hypochondroplasia have snoring issues? we have already delt with respiratory problems but nothing like this loud snoring. Someone also told me that snoring could be a side effect of the Nutrapin growth hormones. I don't know what I should do. I've tried all the normal remedies for snoring already. Just wondering if anyone had any help!!

tape measure

Coleman got a carpenter work bench for Christmas and it came with a bunch of hammers, saws, nails, screwdriver and a tape measure. He loves it! The other day he came up to me with the tape measure and said "I"m big?" I said of course, Yes your big Co Co, and it was such a big moment. He carries it around now talking to himself, "18, 19, 20, I'm Big!" He is a sugar

start over !?!?

I have been trying to reach Colman's endocrinologists for a week or so and keep getting the answering matching. Frustrated I called and talked to a very nice recptionist who said his contract was up and he was leaving. GASP!! So I guess Ill have to find another one or something before his shots need to be sent next month. I hate dealing with appointments and schedules and records. This absolutely sucks but we'll figure it out. Any suggestions on a new endo. around Shreveport?

what to do?

Today I went to get a job application and the secretary talked to Coleman as I filled out papers. When she asked how old he was , I thought here we go again. I aswered he was 3 1/2 years old and she of course, said he was soooo cute and then finally said the inevitable. He is so short, not in a rude way just a curious, interested way.I told her he had a form of dwarfism and was to be short, she shockingly called her friends over to look and pat him. I was inwardly hurt for him , baffled at what to do. Then I look over and he has charmed them all into Chocolate and smiles. Life is one big suprize. Take a deep breath, kristen and get on wwith life.

Go with Your Gut

It seems that the more I hear from other moms that have children with hypochondroplasia,, the more I hear my same story repeated over and over. I knew something was wrong or different with Coleman from early on. His back was crooked, his colic and respiratory problems were so severe. I had a gut feeling that I was right. The pediatrician told me he was just small. Small? I'm 5'10, my husband is 6'1, my dad is 6'4 . Small was not in the cards for my kids. I went to Dr. Chen who is my special gift from God and he is the one who gave us answers. I have had to find things for myself. This whole experience has made me realize what I am capable of achieving with determination and my families help. Therapy, measuring, growth hormone shots, geneticist, hypochondroplasia, questioning doctors, trusting doctors. These things are all new to me and it is scary to have a hunch, not a medical degree. I urge all of you mom and dads to go with your gut. The worst that could happen is you swing and miss. Don't wonder if you could have done more, know that you did all you could do.

Little man Big personality

Coleman was born screaming for the first 9 months of his life, He had bad colic and had no relief unless he was asleep. He was beautiful too. He had jet black hair, olive skin and the chubbiest cheeks I've ever seen. I loved him, but it has always hurt to love him. I could never sooth him when he was an infant, he wouldn't nurse or eat correctly. It has always been so frustrating to not be able to help him. Never more than now when I'm giving him his shots, not knowing what he is thinking as he says" mommy hurt me" , not knowing if I'm pushing to hard or not enough. He is so spoiled and I know I give in sometimes whether its for my benefit or his. I get tired sometimes, if its not the Growth hormone shots its a doctor visit, or a sinus infection, or not sleeping because he snores like a 70 year old obese man. I have a job i love and friends that are irreplaceable, a family that does more than I realize from my Aunt Debbye to my Pop. He has such a larger than life personality, I'm glad he is so tough. He also is a lady's man, he can charm my mom(ewalk) with his grin, my sister in law with begging and me with his kisses. He is a charmer through and through. Loving and Little, Big and Bad. I'm confused what I think of him