if only everyone was like him!

We found out today that Coleman grew one inch this 6 months and the good news is it was all in his legs. His legs went from 13" to 14". His wingspan was 36 1/8". The doctor said he was progressing and that he couldn't grow 2" every time we saw her. We get to increase his Growth Hormone dose to .08 so that is a positive.

Coleman did so good when we got his blood drawn, he suck his arm up there they tied the rubber band on, stuck the needle in and he didn't even flinch. The nurse taking his blood said "if they were all like him I would go home with my hearing and a good attitude."

I want to thank everyone who has followed our progress. Not everyone gets a chance to do the GH shots and we are very blessed to be getting this opportunity. I would hope the documentation we give will be our contribution and our gift to all future Hypochondroplasia kids. Maybe one day this will be protocol and not so hard to get. If there is ever anything we can do lets s know.

Kindergarten has arrived

Carter (6)started first grade. Coleman (5)started Kindergarten.

Coleman started Kindergarten this year. This is his first day of school.

AUG 18

we will be heading to the Endocrinologists August 18th and Ill let you all know about Colemans growth and where his compared to before the GH. They are still working and Ill have the details when we get back.

I ever be like everybody else?

Me and Coleman are sitting on the porch a few minutes ago and I asked if he was ready for Kindergarten. He got quiet and said, "when Carter went to kindergarten he was big and all my friends are big, I don't want to go. I said he was five and all the other kids would be five so he was going. he said " I ever gonna be big like everybody else?" I thought through my answer and said ,you might not be tall like everyone else and that's OK. I told him that's why we go see the doctor in Lafayette and give him a shot every night to see if it will help him grow. He added "and when I try hot dogs they make me grow?"
you know? Its been one of those days when Carter(my 6 yr old with autism) seems worse and getting ready for school. It is more than preparing to go to school it is emotionally getting them ready to. Preparing them to be ready for the questions and comments from peers and adults is almost as daunting as the school work itself. (breath) I also have gotten a new job. I am thrilled but also a little nervous too because I have been able to focus all of my energy on them and now will be tired and busy. Please pray that things go smooth and that Coleman can persevere.



James 1:1-6
2Consider it pure joy, my brothers, whenever you face trials of many kinds, 3because you know that the testing of your faith develops perseverance. 4Perseverance must finish its work so that you may be mature and complete, not lacking anything. 5If any of you lacks wisdom, he should ask God, who gives generously to all without finding fault, and it will be given to him. 6But when he asks, he must believe and not doubt, because he who doubts is like a wave of the sea, blown and tossed by the wind.

a watched pot never boils?

We are going to Lafayette, LA on August 18th to Colman's endocrinologists. She measures him and makes sure the growth hormones are not affecting his organs and blood. Measures his head and legs and his sitting height and standing height. I'll let y'all know what happens. I try to only have him measured when we visit the endo. For one, a watched pot never boils and second, I don't want him to be measured all the time. Am I the only one or are y'all curious to have it done more often. The growth Hormones seem to be working and he is doing great. We have not had as many falls this year, the top heavy topples are fewer and fewer. Let me know how many times you measure your child a year or if you think he's growing do you do it right then? Am I crazy to wait and do it twice a year?

newborn CoCo

Happy 5th Birthday

He is five today.5 When I think back I remember beautiful brown eyes, white wispy hair, snoring, colic, sleepless nights and allergies.
We were worried that he had (OI) but it turned out to be hypochondroplasia. We thoght he might not walk or have braces on his legs but everything has been fine. When we got the oppertunity to try growth hormones we were not sure it would work and they have. God has blessed us with a beautiful, brave son. Coleman is stubborn and sweet. He is testing and forgiving. He is thoughtful and mean. God has given him the personality to survive this life. He is just what God wants him to be. He is everything rolled into one little person. I am proud to be CoCo's mommy. Five years of trying to figure him out. Thank you God for your blessings. Happy Birthday Bug.