six years, one tooth and a vacay

Well, Coleman turned six a few days ago. He asked for a pinata and his grandparents pool. He has such a tough personality. I know I have said before but God made him tough to handle the ups and downs he'll go through. Sometimes I dread a birthday because he will look a whole year smaller. I know thats silly but it comes up in my head. w God has his purpose but I wish we could give our kids a break sometimes...

July 15,2013

Wt. 44. 3 pounds difference Ht 3ft 4.5in. 2 in difference 97.5cm. arm. 95 41cm. Leg. 38.1 07/15/13 Wt. 51. 7 pounds diff Ht. 3 ft 6.5 in. 2 in diff Arm. 102.5. 40.4 in Leg. 42.7

Seven years old

Coleman had a birthday last week. I can't believe he is seven years old already. His dad just took him to the endocrinologist today and we got some good news. He grew two more in and gained 7 lbs since his last visit. We also get to move the growth hormones up to 1.0 now. Dr. Flint also said she believes if things keep progressing that when he reaches his max height he should be around 5'3. I believe what we were told from diagnosis was Coleman would be around 4'4. Things are looking great. Thank you for your love and support.

Worry wart

We just had a baby girl in March. Between that and two active boys in soccer, AWANA, church,swimming and school I had neglected my blogs. Sorry!
So many things have gone through my thoughts lately. I worry Scarlett will be taller than Coleman. Not a loose my hair kind of worry but just a thought. How did you explain to your child that even though there older they are smaller? The other obvious one is if she will be " different". I tried to push it back but it keeps popping up. Carter ( my oldest) has autism and Coleman has hypochondroplasia. She seems to be doing well though. Coleman can't keep his hands off of her. He kisses her and talks to her. I have to admit I was worried my baby would be jealous but he's been great.

he is in a book

We went to Shriners today to see the genetisit Dr. Harold Chen. First of all it was his birthday. His 79th birthday to be precise. He is a genious and so kind. It was just a check up we have every two years. He has written three volumes called "The atlas of Genetic Diagnosis and Counsling" And guess who made it into the book?? Coleman!! I have a couple pictures from our visit too.I will have to down load them later

A new dream...

Going on the journey of being diagnosed and watching our child have to be different is hard there is a part of us that have to let go of the dreams we had and fing a new blessing, a new dream... WELCOME TO HOLLAND by Emily Perl Kingsley. c1987 by Emily Perl Kingsley. All rights reserved I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...... When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

No training wheels!!!!

Coleman has always been more physically coordinated than expected. I have been so proud of the way he pushes through challenges and comes through the challenges stronger. On spring break (he is in kindergarten)we decided to take his training wheels off his itty bitty bike. He was nervous at first but did great. He is five years old now.