Christmas 2010

Is an explination the best

I was asked a question by someone today. Do I think telling everyone Coleman has hypochondroplasia is the best for his well being? I guess it caught me off guard because Im an open book. People seem to be more conciderate when they know why he is so small, or why he seems to look yopunger than his friends. Im not good at secrets or even omissions so I explaine to others. Is knowledge power? Is more information better. I don't know.

put him in my pocket

Coleman wants a drum and a gun for Christmas. We go on Tuesday to sit on Santa's lap. One of the student teachers in Coleman's school always calls Coleman "Pocket" and so I asked her what she meant and she said some day she was gonna put him in her pocket. It is so fun having him be little and cute now. I wish I could bottle up these moments and put them in my pocket

Pediatrition Road Block

I have been reading a bunch of emails lately about how parents show concern time and again and the Pediatritions are not worried. I know I felt like maybe I was crazy. Coleman was not as big as Carter was at the same ages and I tried not to compare but Im glad I did. Carter is big for his age and Coleman is small for his age. I wish mothers intuition was conciderd more. That gut feeling you get when they are different than their peers. I wish we we not concidered worriers or overconcerned and were taken seriously. I have an excellent pediatrition who just wasn't concerned enough for me. He is right Coleman is fine, hes just short but I wanted answers and solutions not to wait and wait. Waiting does help if there is nothing wrong but what is early intervention is crutial?? What if the months you waited could have made a difference?? We dont have a degree in medicine but we know our kids. Please,Listen.

Speech

Coleman has had so many changes(for the good) in the past three months. It started when he got his tonsils out in August, and then going to school and being in a structures environment. He has always been behind in his speech, which seems about normal for kids with hypochondroplasia. I was wondering if others with Hypochondroplasia have experienced speech problems or delays also? Coleman qualified to get into PreK at our local elementary school and his therapist are there in the school. He qualified for Speech Therapy and APE (Adapted Phy. Edu.) and is in a regular ed. class. He is vocalizing his needs and wants to friends and teachers. He is speaking so well now, I rarely have to ask "what did you say" He is also showing interest in books and school, where he was not. I think it is a combination of tonsils out and school making more confidence.

Love

I love my life.
James 1:2-4 says;
"Consider it all joy, my brethren, when you encounter various trials, knowing that the testing of your faith produces endurance. And let endurance have its perfect result, so that you may be perfect and complete, lacking in nothing."
I believe God has a purpose for our family, weather or not the growth hormones work, weather or not the kids struggle. He has a plan...He is sufficient. Life is hard enough, why go through it with out Christ?

Holidays and Meds

My wonderful family lives in Hot Springs,AR and we live in Louisiana. Its about 3hrs to there house and so traveling is not bad...but traveling with the growth hormone presents obstacles, like keeping it cold or even just remembering it. I know this sounds petty, but when the circumstances change I forget to give it to him sometimes. I do not want to ever forget it but in all the commotion of Christmas and family and sleep deprivation I do. Grrrrrrrr.