No training wheels!!!!

Coleman has always been more physically coordinated than expected. I have been so proud of the way he pushes through challenges and comes through the challenges stronger. On spring break (he is in kindergarten)we decided to take his training wheels off his itty bitty bike. He was nervous at first but did great. He is five years old now.

I just don't know

I wish I could answer every ones questions. I have a facebook account and it is on my blog if you want to go into more detail. Just message me first so I know you are not some weirdo. ha ha.
One thing I do want to say about the growth hormones is I don't know of another Hypo that has been on them. If someone out there that has specifically hypochondroplasia and has taken Growth hormone shots or has been on them please let me know. So because of that I don't know what results will or could be. The doctors can guess but that is all it would be is a guess. Coleman is very tough. The shots don't really give him a lot of pain or trouble. If my oldest had been short and had to have these Id be in trouble because he does not have the pain tolerance Coleman has. I know that we as parents have to do more than take the word of the doctor. In America we have genetisist that we can go to to determine if they are growth hormone defficiant or have a form of dwarfism and so on. If you think more is going on. Go with your gut and find out.

3ft. 3in

Coleman is 5 1/2 years old
Height is 99.5cm (3ft,3in)
Wingspan is 37.5 in
Leg Length's are 15 in and 15.5 in
growth total this year 2.5 in
Total growth is 7.5 in in two years since growth hormone shots

We went to Children's Specialty Hospital on Thursday to get his measurements and his blood work. We don't have the blood work in yet but he is doing great. our doctor said that she has had other Hypochondroplasia kids try to get the GH shots but all were denied. I know we are lucky to gt this opportunity and wish there was something we could do for others. Ill keep you posted.

Shot or no shot?

So, I got a call from genetec, the growth hormone company that supplies Coleman's growth hormone and got a shock of a life time. They said they could no longer supply us with it because after reviewing his chart they discovered he had a diagnosis. The drug test they were doing was for individuals with growth hormone deficiencies only. I was in complete shock, why now after two years are you pulling the plug on something that's changed our lives. I tried to tell them it was working, we were seeing results, he is more proportional and his legs are growing. We have had no negative side effects at all. But they had their mind set and told me I could try to go through my insurance company (we all know how that goes). I even told them about you all. About my HypochondroplasiaKid blog followers. How if this works for CoCo it could work for your child.
To make a long story short after crying and being disappointed, the growth hormone ran out and I told Coleman we were having to stop the superman shots. He was confused and asked every night about it. I finally told God, if this was it, if we couldn't get them again then thank you for the opportunity. I told people and family to pray about it and I came to the decision this was Gods will, His decision. I was and have always been content with Coleman's size, diagnosis and all that entails. It was just disappointing to have something that makes life easier for my baby boy to be taken away.
Well our insurance company called us back two weeks later. They are sending us the growth hormone, they approved us. The genetec company called them and asked them to continue supplying us with it. We got our first shipment in today. Maybe we can change things for these kids. Give them a boost in life. Keep praying that we continue to see results in Coleman and that that leads to more opportunity for our kids to get them as protocol. I love you guys.

Family Support

I have a great family. They have been so supportive and helpful with everything. My husband and his mom have been my rock with the Growth Hormone Shots. My parents have prayed and listened to my rantings. My sister in law Andrea takes the kids for sleepovers or babysit when we have a long doctor visit with Coleman.

This is a picture of my family on Christmas morning.

God is still God even if things dont go your way

God is still God even if things don't go your way.
I have been reading the Redemption series by Karen Kingsburry and it is about a family that goes through all kinds of obstacles from death to handicapped children to sins effects.
Anyway, to make a long story short, in the book a woman is debating God doing miracles. Why do some get their miracle and some dream of miracles. Who gets one and what determines a miracle candidate?
Anyway as I was reading one of the characters says "God is still God even if things don't go your way."
Yes, yes he is but as a Christian maybe I feel I and some others I love, need a miracle, a change. Why do we as Christ followers feel we deserve miracles?
Well I have come to the conclusion that we see people in the bible or maybe others in our time that God did amazing things and we feel that because we love the same God and have faith in Him he will move mountains. And he will and does but it might not be when or what we want in our time. If we could pray something into being would we need a God? Just putting things out there? let me know what y'all have discovered in your pain, in your relationship with God.

love may abound more and more

"And it is my prayer that your love may abound more and more, with knowledge and all discernment, so that you may approve what is excellent, and so be pure and blameless for the day of Christ, filled with the fruit of righteousness that comes through Jesus Christ, to the glory and praise of God."
Philippians 1:9-11
http://www.cfcare.org/
I have really felt God asking me to looking into adopting a child that has dwarfism lately. I have always wanted to adopt since 1999 when I took a mission trip top The Dominican Republic and saw children w/o parents. But knowing my children could be one of them it appalling. Just asking for wisdom. Financially it is out of the question but God is bigger than money.