my boys 2012

my boys 2012
Coleman is 6 Carter is 7

What is hypochondroplasia?

Hypochondroplasia is a form of short-limbed dwarfism. This condition affects the conversion of cartilage into bone (a process called ossification), particularly in the long bones of the arms and legs. Hypochondroplasia is similar to another skeletal disorder called achondroplasia, but the features tend to be milder.

All people with hypochondroplasia have short stature. The adult height for men with this condition ranges from 138 centimeters to 165 centimeters (4 feet, 6 inches to 5 feet, 5 inches). The height range for adult women is 128 centimeters to 151 centimeters (4 feet, 2 inches to 4 feet, 11 inches).

People with hypochondroplasia have short arms and legs and broad, short hands and feet. Other characteristic features include a large head, limited range of motion at the elbows, a sway of the lower back (lordosis), and bowed legs. These signs are generally less pronounced than those seen with achondroplasia and may not be noticeable until early or middle childhood. Some studies have reported that a small percentage of people with hypochondroplasia have mild to moderate intellectual disability or learning problems, but other studies have produced conflicting results.

Me and Carter and Coleman

Me and Carter and Coleman
easter 2011

My Weather

Carter 5yrs /Coleman 3yrs

Carter 5yrs /Coleman 3yrs
2009

Friday, March 28, 2014

Excuse me? Uh huh

It is spring break this week in Louisiana so we did a few fun things. Scarlett's first birthday, visiting grandparents and great pop in Arkansas and went camping in north Louisiana. It's a place called Bodcau and it's quiet with a playground and bike roads so the kids can have a blast. Well it was mid afternoon and I noticed all the kids playing around the campfire but Coleman so I asked his best friend/cousin Georgia where he was. That's when she told me two teenagers had told him he was too short and laughed. Being a Christ follower I took a deep breath and asked God to calm my aching heart. Of course Coleman would rather die than tell me what was said. He's so independent and strong but I'm NOT! I marched up into the woods and asked politely as I could "did you say something to my son?" Which one replies "we never said anything about height!" Uh huh yep I hadn't yet either sugar!! So I say " well he has a form of dwarfism and is sensitive when two teenagers put him down, next time you speak you should think first" as I turned around their mom is starting to get out of the tent. I told her I was sorry to confront them but they had an opportunity to make an impression on my child but the chose to hurt him. The mom was polite and said she'd take care of them. I never do things like that but the quite sadness oozing off Coleman was too much. Don't mess with any of my babies!

What? What did you say?

Coleman has been asking "what?" After everything we say  lately. I thought at first he wasn't listening or he was trying to get under my skin but I don't think that's the case. I called his speech therapist and she noticed the trouble too. I also noticed he's been reading lips. He fails the school hearing test every year but when we go to the official hearing test he passes. So anyway to to make a long story short, we are go to  the evaluation center to get some more tests done. He is seven years old now, so would the hypochondroplasia hearing loss show up now? Does anyone else have experience with this? Let me know if you have! I love having my hypos support from other moms and dads.

Saturday, January 4, 2014

Who R U

Coleman  is heading back to see Dr. Flint in Lafayette, LA on Monday, January 6,2013. He is doing good. I will let everyone know what she says about the neutropin growth hormones and what she thinks his progress is .
He is doing well, in school, in health and emotionally. He asked this year about why he was shorter, why he had to take shots, why it had to be him. I told him like I tell my kids all the time. Everyone has something they have to overcome or something that makes their life harder. My oldest son Carter is autistic and I have ADD, Coleman has hypochondroplasia. I wish I could take their pain away sometimes but if I did I would rob them of who they will be. I have freak out moments where I cry and ask God my savior, my friend, my Lord why, why us? I know in my heart he has and will be an encouragement to other kids. What we see as weakness God uses for his glory. Coco is a tough little thing and I wouldn't change him for the world.

Monday, November 4, 2013

My info

My email is randomkcvp@yahoo.com My FB is Kristen Carter vining Pratt

Empathize exercise

I have not been in any group or anything for kids with special needs kids. But lately I've noticed that when im with a parent with a kid that has autism or dwarfism I don't feel as lonely. I like talking to someone that's not looking at me with pity or awe but just two people having a regular conversation. I have been so proud of both my boys. School is not easy, sports are not easy, big crowds are not easy. They adjust and move on. I feel mean sometimes because I push them to be so independent and expect them to overcome hurt and unfairness in life. God has been motivating me to look for hurting parents with special needs kids and just Empathize. Just let them know they are not alone. Life can be hard and people that don't mean to hurt us do. A look. A pat on the head. A hint that your not quite like everyone else. And when it's our kids... Coleman's award assembly was last week. It felt like Everyone got an award but him. He looked at me and said "I'm not good at school. Why did you come?" Hurt!! I told him I didn't care about all As or awards but I cared about effort and attitude and I was there because I was proud to be his mom. My challenge to you, to me, to my kids is to look into people's eyes. Look into their lives and be sympathetic, listing, hugging,empathizing,and loving. You never know what your love could mean to that person.

Tuesday, July 16, 2013

when he was born


2 days old

six years, one tooth and a vacay

Well, Coleman turned six a few days ago. He asked for a pinata and his grandparents pool. He has such a tough personality. I know I have said before but God made him tough to handle the ups and downs he'll go through. Sometimes I dread a birthday because he will look a whole year smaller. I know thats silly but it comes up in my head. w God has his purpose but I wish we could give our kids a break sometimes...
We also went on a two week vacation. Not just a vacation but a two weeker driving 24 hours there and 24 back and some in between. It was spectacular, memorable and stressfull. We went to the Grand Canyon (north and south rim) Zion, and bryce Canyon. We hiked a lot, which was difficult for Coleman. He did it for the most part unaided. We met people from all around the world and had run in's with questions about his size. I wish we could have a vacation from the questions sometimes. I kno
And third CoCo lost his first tooth today. I literally mean "lost", we cant find it! It was soooo loose and we think he either swallowed it or it is in the bottom of the pool. At least its a funny first tooth story. Fun Fact: you loose your teeth in order that you got them. FYI- we go to Shriners on July 27th and see all t
he doctors including the genetisist. Any questions you have Id be happy to ask him.

Coleman

Coleman
spring 2011

Coleman

Coleman
2008