my boys 2012

my boys 2012
Coleman is 6 Carter is 7

What is hypochondroplasia?

Hypochondroplasia is a form of short-limbed dwarfism. This condition affects the conversion of cartilage into bone (a process called ossification), particularly in the long bones of the arms and legs. Hypochondroplasia is similar to another skeletal disorder called achondroplasia, but the features tend to be milder.

All people with hypochondroplasia have short stature. The adult height for men with this condition ranges from 138 centimeters to 165 centimeters (4 feet, 6 inches to 5 feet, 5 inches). The height range for adult women is 128 centimeters to 151 centimeters (4 feet, 2 inches to 4 feet, 11 inches).

People with hypochondroplasia have short arms and legs and broad, short hands and feet. Other characteristic features include a large head, limited range of motion at the elbows, a sway of the lower back (lordosis), and bowed legs. These signs are generally less pronounced than those seen with achondroplasia and may not be noticeable until early or middle childhood. Some studies have reported that a small percentage of people with hypochondroplasia have mild to moderate intellectual disability or learning problems, but other studies have produced conflicting results.

Me and Carter and Coleman

Me and Carter and Coleman
easter 2011

My Weather

Carter 5yrs /Coleman 3yrs

Carter 5yrs /Coleman 3yrs

Tuesday, August 24, 2010

In & Out

Coleman went to his first day at "big boy "school at T.L.Rodes Elementary. I was so proud of him and his brother in their uniforms. Our Elementary has a preschool in it and CoCo was accepted. Carter started Kindergarten and Coleman preK. The toilets are practically on the ground so he can reach, the water fountains are shorter. He looked at me the first day and said "it's My size." I am so excited for my boys.Coleman was cute as a button in his uniform and backpack, the rules prohibit backpacks with wheels but when we put it on him his feet left the ground so they let him role into school.

Then that same day we had a doctors apt because Coleman's sleep apnea has gotten worse. Its like he can't catch a breath until its too late and he inhales abruptly. It is scary, and exhausting. He is not sleeping and neither am I. I was planning on getting his tonsils out during Thanksgiving break but Dr.Rice said "how about Friday." So Friday we got his tonsils out and he is breathing so much better I'm ashamed I didn't do it earlier.

Sunday, August 15, 2010

a pictures worth 1000 words

I was going through some of Coleman's old photos and I was better able to tell he was growing. His legs especially. It is funny how people would say that he was growing or looked taller and I took it as being "nice". I see now that they were not with him daily and could see things I couldn't. I wish I could see the future and know that bullies would not exist for him and self esteem would never be an issue but right now I am just glad he and his brother are here and safe. God made them so special and so perfect that it brings tears to my eyes sometimes. I know now why my parents seemed overprotective, they loved me.
My pastor lost his daughter Jessica over a year ago and he talked about her in his sermon today. I wish she was still here just as her family does but God wanted her with Him. It put my kids struggles in perspective and made me appreciate them more. In II Corinthians 12:9it says "My Grace is sufficient for you, for my power is made perfect in weakness." I feel like these past few years have been challenging to say the least but God has been consistent, it is I that have struggled. James 1:2 says "Consider it pure joy whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance."

Friday, August 6, 2010

Nana Knew

My sweet Nana died of cancer almost a year ago from this week. She was one of the first people I asked to pray and consider the growth Hormone for CoCo from the beginning. She knew he would get them and had confidence that God was faithful. Let me clarify that Gods faithfulness is constant with or with out Growth Hormones or dying of cancer. God loves me and my family when things are great and all I have needed He has provided but he loves me and is faithful when things do not turn out as I plan also. As Natalie Grant sings " who told us we'd be rescued?, why should we be saved from sorrow...this is how it feels to be held, how it feels when the sacred is torn from our lives and you survive..."
And so I have survived, to miss my Nana and see my Pop change from her loss. I've let dreams of my "perfect" family go and seen new ones form. Today was bitter sweet because with the good news that Coleman is growing, I missed her all over again. Because I felt jipped that she wasn't here to hear my news,selfish I know. I am comforted that maybe she knows CoCo and I are doing great and that her prayers to God were everything to me.
I smiled today in a knowledge that she knew, Nana knew everything would work out. She was always calm when I was panicky or faithful when I was unsure but today my faith in God increases, not because of Coleman growing but because I am growing in Christ.

2 inches in 4 months

Whew hew!! We have good news, The Endocrinologists in Lafayette measured Coleman today and said he had grown two inches since March. That is excellent since an average toddler grows 2 inches in a year. He was 33 1/2 in March and 35 1/2 today(8-6-10). His legs had grown an inch of the two inches which is great since that is where his height is shortest. He had lost a 1 1/2 lbs so we need to keep an eye on that, 30lbs to 28.8lbs so its not much. We are to keep the Neutropin Growth Hormones at .06 until he gains some weight. She had asked if his feet had grown and when I told her they had gone fro a size 5 to 8 in 5 months she was excited.

Thursday, August 5, 2010

Dr. Flint

We leave early tomorrow morning to go see Dr. Flint our endocrinologist for Coleman. I feel like I am going to drive 4hrs there and four back just to hear he is doing good but no change. We are still giving him .6 of the Growth Hormone. Ill let you know what she says or if there is any new information she has. Maybe he's grown some? maybe not? it feels weird to be anxious about it.


spring 2011