Crazy Beautiful

We went to the Endocrinologist in Lafayette last week and when we were there I was not exactly emotionally "in the moment". Coleman was wallering around the doctors office, 4 hr drive there and 4 hrs back does not exactly put me in the best frame of mind. So long Thursday, then Friday I have d-now weekend, which is about 10, 8Th grade boys staying at my house all weekend, which was actually wonderful but exhausting and to add stress my parents were supposed to be there all weekend. I wanted to be with them and with the church group and couldn't do both so it was crazy. We were rolled when we woke up on Sunday, which is hilarious I'm sure. Then I had scheduled a woman's party on that following Monday. To put a crown on this beautiful weekend I decided to steam clean my carpets in the playroom and dinning room. Well it backfired on me and made the carpets reak all weekend like dog pee or mold. Ugh!!!


To say all of this is to complain, I know. BUT I want everyone to know God was faithful when I was not. He came into our home even though I had a bad attitude. God provided My parents to help when I had not thought to ask. God gave my baby Coco almost 2 more inches when I dared not hope for one. I realize that I can not do life on my own...
Everything had to fall into place for Coleman to receive the growth hormone in the first place. The geneticist had to recommend the right doctors and have connections. The 3rd doctor we visited was more helpful than he was required to be and when he left Dr. Flint stepped right in to be our guide in all of this. It is a long exhausting process of paper work and denial letter and approval letters until one day some ones says yes. It all falls into place and I think to myself, we did a good job for Coleman but in all reality God is in control. I forget to thank the creator the King of Kings, my Love and my Redeemer.We went to the Endocrinologist in Lafayette last week and when we were there I was not exactly emotionally "in the moment". Coleman was wallering around the doctors office, 4 hr drive there and 4 hrs back does not exactly put me in the best frame of mind. So long Thursday, then Friday I have d-now weekend, which is about 10, 8Th grade boys staying at my house all weekend, which was actually wonderful but exhausting and to add stress my parents were supposed to be there all weekend. I wanted to be with them and with the church group and couldn't do both so it was crazy. We were rolled when we woke up on Sunday, which is hilarious I'm sure. Then I had scheduled a woman's party on that following Monday. To put a crown on this beautiful weekend I decided to steam clean my carpets in the playroom and dinning room. Well it backfired on me and made the carpets reak all weekend like dog pee or mold. Ugh!!!

sWiMmInG

Swimming has been the best thing I've done for Coleman's phisical therapy. The Swim School has been so helpful with adapting to his needs. Going from hating the water to loving it and looking forward to mondays leassons. His strength in his neck was next to none and now he can breath on his own. They are teaching him to flip onto his back from the front, he puts one arm up close to his ear and doing the backstroke. Super cute. His teacher is awesome and so are the other swim coaches. I heart the swim school.

on the growth chart

Well our long drive down south paid off. We saw Dr. Flint the endocrinologists at The children's speciality hospital. We did see growth:
Lower segment (legs)one leg was 13 in.. the other leg was 13 1/4 in . The over all growth in the legs was 3/4s in 6 months.
Wingspan (arm length) was 34 1/2 in... total growth was 1 in in 6 months.
Height was 37 inches and he grew 1.5 inches in 6 months.
Total height for the growth hormones started (year) has been 3 3/4s inches total.
The best news of all was that he made it onto the growth chart. He had to get his blood taken and didn't even flinch. He was wonderful. Thanks for all the prayers and thoughts for our journeys with Coleman. Your support is invaluable.

Coming Soon

We go to Lafayette, LA on February 17th to see Coleman progress. She (Dr. Flint)measures his head, his legs and his height. I don't like to measure him all the time because "a watched pot never boils". We visit the endocrinologist about every 6 months or so. Ill let you know how the bloodwork comes out. The bloodwork shows how his internal organs are doing and if the growth hormone if effecting his body. We have never had anything to show its doing harm. Just a heads up that next thursday we'll know a little more about Colemans progress.

all the Kings horses

The other day we were in the church santuary talking before band practice watching the kids run around and play. I was telling some of my close friends that Coleman was growing and doing well. I bragged that we had not had a head injury in a few months and I thought his balance was improving. We talked about the growth hormones and our kids before starting the first song. Before we had even finished the first run through I see the drummer look at me and mouth "Coleman". I looked over at the kids to see CoCo's mouth bloody and panick in his eyes. he had been running and lost his balance, fell forward and hit the bottom of the pew. We went to the Emergency Room and sat for three hours (watching Toy Story II) and at the end they just told us to go home and let it heal. he is oing a lot better now, but I hate that fe falls all the time, it worries me to death. But yet again he was wonderful, not a lot of tears and crying and he ate
and drank the next day. Such a trooper