Hypochondroplasia kid: 2013

What is hypochondroplasia?

Hypochondroplasia is a form of short-limbed dwarfism. This condition affects the conversion of cartilage into bone (a process called ossification), particularly in the long bones of the arms and legs. Hypochondroplasia is similar to another skeletal disorder called achondroplasia, but the features tend to be milder.

All people with hypochondroplasia have short stature. The adult height for men with this condition ranges from 138 centimeters to 165 centimeters (4 feet, 6 inches to 5 feet, 5 inches). The height range for adult women is 128 centimeters to 151 centimeters (4 feet, 2 inches to 4 feet, 11 inches).

People with hypochondroplasia have short arms and legs and broad, short hands and feet. Other characteristic features include a large head, limited range of motion at the elbows, a sway of the lower back (lordosis), and bowed legs. These signs are generally less pronounced than those seen with achondroplasia and may not be noticeable until early or middle childhood. Some studies have reported that a small percentage of people with hypochondroplasia have mild to moderate intellectual disability or learning problems, but other studies have produced conflicting results.

Monday, November 4, 2013

My info

My email is randomkcvp@yahoo.com My FB is Kristen Carter vining Pratt

Empathize exercise

I have not been in any group or anything for kids with special needs kids. But lately I've noticed that when im with a parent with a kid that has autism or dwarfism I don't feel as lonely. I like talking to someone that's not looking at me with pity or awe but just two people having a regular conversation. I have been so proud of both my boys. School is not easy, sports are not easy, big crowds are not easy. They adjust and move on. I feel mean sometimes because I push them to be so independent and expect them to overcome hurt and unfairness in life. God has been motivating me to look for hurting parents with special needs kids and just Empathize. Just let them know they are not alone. Life can be hard and people that don't mean to hurt us do. A look. A pat on the head. A hint that your not quite like everyone else. And when it's our kids... Coleman's award assembly was last week. It felt like Everyone got an award but him. He looked at me and said "I'm not good at school. Why did you come?" Hurt!! I told him I didn't care about all As or awards but I cared about effort and attitude and I was there because I was proud to be his mom. My challenge to you, to me, to my kids is to look into people's eyes. Look into their lives and be sympathetic, listing, hugging,empathizing,and loving. You never know what your love could mean to that person.

Tuesday, July 16, 2013

when he was born

2 days old

six years, one tooth and a vacay

Well, Coleman turned six a few days ago. He asked for a pinata and his grandparents pool. He has such a tough personality. I know I have said before but God made him tough to handle the ups and downs he'll go through. Sometimes I dread a birthday because he will look a whole year smaller. I know thats silly but it comes up in my head. w God has his purpose but I wish we could give our kids a break sometimes...

We also went on a two week vacation. Not just a vacation but a two weeker driving 24 hours there and 24 back and some in between. It was spectacular, memorable and stressfull. We went to the Grand Canyon (north and south rim) Zion, and bryce Canyon. We hiked a lot, which was difficult for Coleman. He did it for the most part unaided. We met people from all around the world and had run in's with questions about his size. I wish we could have a vacation from the questions sometimes. I kno

And third CoCo lost his first tooth today. I literally mean "lost", we cant find it! It was soooo loose and we think he either swallowed it or it is in the bottom of the pool. At least its a funny first tooth story. Fun Fact: you loose your teeth in order that you got them. FYI- we go to Shriners on July 27th and see all t

he doctors including the genetisist. Any questions you have Id be happy to ask him.

Monday, July 15, 2013

July 15,2013

Wt. 44. 3 pounds difference Ht 3ft 4.5in. 2 in difference 97.5cm. arm. 95 41cm. Leg. 38.1 07/15/13 Wt. 51. 7 pounds diff Ht. 3 ft 6.5 in. 2 in diff Arm. 102.5. 40.4 in Leg. 42.7

Seven years old

Coleman had a birthday last week. I can't believe he is seven years old already. His dad just took him to the endocrinologist today and we got some good news. He grew two more in and gained 7 lbs since his last visit. We also get to move the growth hormones up to 1.0 now. Dr. Flint also said she believes if things keep progressing that when he reaches his max height he should be around 5'3. I believe what we were told from diagnosis was Coleman would be around 4'4. Things are looking great. Thank you for your love and support.

Thursday, May 2, 2013

Worry wart

We just had a baby girl in March. Between that and two active boys in soccer, AWANA, church,swimming and school I had neglected my blogs. Sorry!
So many things have gone through my thoughts lately. I worry Scarlett will be taller than Coleman. Not a loose my hair kind of worry but just a thought. How did you explain to your child that even though there older they are smaller? The other obvious one is if she will be " different". I tried to push it back but it keeps popping up. Carter ( my oldest) has autism and Coleman has hypochondroplasia. She seems to be doing well though. Coleman can't keep his hands off of her. He kisses her and talks to her. I have to admit I was worried my baby would be jealous but he's been great.