Hi, my name is Kristen. I have two beautiful boys, my youngest being the reason I'm creating this blog. He was diagnosed with something called Hypochondraplasia a little after he turned one. I am having trouble finding out information on his specific condition and was also looking to connect with others who have hypocondraplasia or are a parent to someone who has this. I would love any feed back or ideas. Thank you
hello kristen, my name is kristin also!! my son isaac who will be 2 in november was diagnosed with hypochondroplasia last month.
ReplyDeleteive been trying really hard to cope with this and i feel overwelmed .
their really isnt alot of info on the net and thats really the frsterating part! my email is kjimenez25@yahoo.com i would love to hear from you!
my email is jpepper616@yahoo.com
ReplyDeletemy son is in the process of being diagnosed with this. He is 8 years of age.
my email is randomkcv@yahoo.com I do not email a lot but I do have a facebook if that would be easier
ReplyDeleteHello Kristen, my name is Sophie, I'm french and my daughter Juliette, 4 years old, was diagnosed with hypocondroplasia too. I would be really interested to know more about the growth hormone treatment that your son Colemean is taking! Thank you so much, here is my mail: scrueghe@hotmail.com.
ReplyDeleteHope to hear from you soon.
P.S: Coleman is such a cute boy!!!
Hello Kristen, my name is Sophie, I'm french and my daughter Juliette, 4 years old, was diagnosed with hypocondrolplasia too. I would be very interested if you could give me informations about the growth hormone treatment of your son. Thank you so much, my email is: scrueghe@hotmail.com.
ReplyDeletePS: Coleman is a really cute boy!!
Hi, I am a 31 year old who has hypo. I was diagnosed at the age of 5 Kbut there was very little known about it then so it's great your little boy will have so many others he knows of who have it too. Having hypo has been no big deal for me and I've been lucky enough to have always been surrounded with great family and friends. I got married last year and am planning on my own family now but I am now finding it difficult to find others who have had hypo and had kids.
ReplyDeletehi my name is Ramona i am 26 and have hypo my family didn't know to much abut it either i am 4"6 and have 2 beautiful children my daughter is almost 4 and my son is 5 months and just got a diagnosis of so we are now testing my daughter I would like to give u a bit of advise kids can be cruel so just reassure him he is perfect just the way he is.
ReplyDeleteDear kristen,
ReplyDeletei think you are lucky Coleman is a goodlooking boy!
I live in Italy and have a two years and half child hypo who was born premature. He is late in speech (he can say only four words).
I would like to ask you a suggestion do you think is appropriate for the wellness of the kid to tell other people our kids have hypo?
thanks and keep in touch
I believe it is the best decsion for us to let people know. For one we are very tall and people notice the differences and voice them It is my experience that when people are informed for the most part they are curious and more tactful around Coleman. I would hope that explaining it would not harm him in the future but I guess people already know he is different so an explanation seems appropriate. What do you think? I am an open book as are my kids. My oldest has autism and expinations are needed more than coleman heighth difference.
ReplyDeleteHi, I am from Chile and my son, who is 5 months old, was diagnosed with this when he was 2 months old (when I was pregnant the doctor already suggested there was something going on because of the length of his legs and arms). Although he was born with a normal length (50 cm) he doesn´t grow as much as the other kids do month to month.
ReplyDeleteHe already looks smaller than other kids his age, but the doctor says we have to check on his growth once a year to see how he goes. He is a wonderfully smart and beautiful boy.
About telling people of his condition, the doctor advised me not to, that people doesn´t need to know he has a "condition", and that they will just look at him as a short guy, nothing more.
But I guess it is up to every parent to make this desicion, and see what makes the most sense to them.
Good luck with your treatment and enjoy your beautiful kids! We are blessed to have them.
I guess I am more open than most are with my life. I feel the need to explain to inform. People didn't start commenting on his stature until he started walking and getting teeth and some people would say "wow that baby already has teeth" or "he is to young to be walking" when actally he was 17 months before he walked. I guess what ever feels right is what should happen. I would love to keep up with ya'll. Thanks for commenting
ReplyDeleteHi Kristen
ReplyDeletemy son is 16 months old, just started to walk and is hypo. He was diagnosed when was 3 months old. We went trough allot and thanks to your blog and other people I managed to deal with this preatty well. He only says 3 words as in mamma babbo and nonna (italian for mum dad and grandma) but he seems preatty smart and spends his time doing many many things. Your Coleman is amazing and I have to say from the photos he is proportionated. His arms and legs don't seem to be too short comparing to the upper body, my son instead has a very large head and visibly shorter arms and legs. Here in italy doctors talk about doing bone extention that would give him extra 20 cm on his total hight, but only when he will turn 11/12 years old. In the meantime we have to face the look of the others. My husband is ok, I sometimes get annoyed... Hope to hear from you and best wishes for everything.
Chiara