Sunday, February 19, 2012
Shot or no shot?
So, I got a call from genetec, the growth hormone company that supplies Coleman's growth hormone and got a shock of a life time. They said they could no longer supply us with it because after reviewing his chart they discovered he had a diagnosis. The drug test they were doing was for individuals with growth hormone deficiencies only. I was in complete shock, why now after two years are you pulling the plug on something that's changed our lives. I tried to tell them it was working, we were seeing results, he is more proportional and his legs are growing. We have had no negative side effects at all. But they had their mind set and told me I could try to go through my insurance company (we all know how that goes). I even told them about you all. About my HypochondroplasiaKid blog followers. How if this works for CoCo it could work for your child.
To make a long story short after crying and being disappointed, the growth hormone ran out and I told Coleman we were having to stop the superman shots. He was confused and asked every night about it. I finally told God, if this was it, if we couldn't get them again then thank you for the opportunity. I told people and family to pray about it and I came to the decision this was Gods will, His decision. I was and have always been content with Coleman's size, diagnosis and all that entails. It was just disappointing to have something that makes life easier for my baby boy to be taken away.
Well our insurance company called us back two weeks later. They are sending us the growth hormone, they approved us. The genetec company called them and asked them to continue supplying us with it. We got our first shipment in today. Maybe we can change things for these kids. Give them a boost in life. Keep praying that we continue to see results in Coleman and that that leads to more opportunity for our kids to get them as protocol. I love you guys.
To make a long story short after crying and being disappointed, the growth hormone ran out and I told Coleman we were having to stop the superman shots. He was confused and asked every night about it. I finally told God, if this was it, if we couldn't get them again then thank you for the opportunity. I told people and family to pray about it and I came to the decision this was Gods will, His decision. I was and have always been content with Coleman's size, diagnosis and all that entails. It was just disappointing to have something that makes life easier for my baby boy to be taken away.
Well our insurance company called us back two weeks later. They are sending us the growth hormone, they approved us. The genetec company called them and asked them to continue supplying us with it. We got our first shipment in today. Maybe we can change things for these kids. Give them a boost in life. Keep praying that we continue to see results in Coleman and that that leads to more opportunity for our kids to get them as protocol. I love you guys.
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Hi! I found your blog through another one. My son has Achondroplasia. How does HGH work for Hypo and not Achon? I'm curious. After hearing about the new study that is going on it sounds promising!!
ReplyDeleteKatie