my boys 2012

my boys 2012
Coleman is 6 Carter is 7

What is hypochondroplasia?

Hypochondroplasia is a form of short-limbed dwarfism. This condition affects the conversion of cartilage into bone (a process called ossification), particularly in the long bones of the arms and legs. Hypochondroplasia is similar to another skeletal disorder called achondroplasia, but the features tend to be milder.

All people with hypochondroplasia have short stature. The adult height for men with this condition ranges from 138 centimeters to 165 centimeters (4 feet, 6 inches to 5 feet, 5 inches). The height range for adult women is 128 centimeters to 151 centimeters (4 feet, 2 inches to 4 feet, 11 inches).

People with hypochondroplasia have short arms and legs and broad, short hands and feet. Other characteristic features include a large head, limited range of motion at the elbows, a sway of the lower back (lordosis), and bowed legs. These signs are generally less pronounced than those seen with achondroplasia and may not be noticeable until early or middle childhood. Some studies have reported that a small percentage of people with hypochondroplasia have mild to moderate intellectual disability or learning problems, but other studies have produced conflicting results.

Me and Carter and Coleman

Me and Carter and Coleman
easter 2011

My Weather

Carter 5yrs /Coleman 3yrs

Carter 5yrs /Coleman 3yrs
2009

Sunday, August 15, 2010

a pictures worth 1000 words


I was going through some of Coleman's old photos and I was better able to tell he was growing. His legs especially. It is funny how people would say that he was growing or looked taller and I took it as being "nice". I see now that they were not with him daily and could see things I couldn't. I wish I could see the future and know that bullies would not exist for him and self esteem would never be an issue but right now I am just glad he and his brother are here and safe. God made them so special and so perfect that it brings tears to my eyes sometimes. I know now why my parents seemed overprotective, they loved me.
My pastor lost his daughter Jessica over a year ago and he talked about her in his sermon today. I wish she was still here just as her family does but God wanted her with Him. It put my kids struggles in perspective and made me appreciate them more. In II Corinthians 12:9it says "My Grace is sufficient for you, for my power is made perfect in weakness." I feel like these past few years have been challenging to say the least but God has been consistent, it is I that have struggled. James 1:2 says "Consider it pure joy whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance."

2 comments:

  1. Kristen, Thanks so musch for blogging. Your children are just beautiful! Thank you for the scriptures and honest, gentle words.

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Coleman

Coleman
spring 2011

Coleman

Coleman
2008