Hypochondroplasia kid: Nana Knew

What is hypochondroplasia?

Hypochondroplasia is a form of short-limbed dwarfism. This condition affects the conversion of cartilage into bone (a process called ossification), particularly in the long bones of the arms and legs. Hypochondroplasia is similar to another skeletal disorder called achondroplasia, but the features tend to be milder.

All people with hypochondroplasia have short stature. The adult height for men with this condition ranges from 138 centimeters to 165 centimeters (4 feet, 6 inches to 5 feet, 5 inches). The height range for adult women is 128 centimeters to 151 centimeters (4 feet, 2 inches to 4 feet, 11 inches).

People with hypochondroplasia have short arms and legs and broad, short hands and feet. Other characteristic features include a large head, limited range of motion at the elbows, a sway of the lower back (lordosis), and bowed legs. These signs are generally less pronounced than those seen with achondroplasia and may not be noticeable until early or middle childhood. Some studies have reported that a small percentage of people with hypochondroplasia have mild to moderate intellectual disability or learning problems, but other studies have produced conflicting results.

Friday, August 6, 2010

Nana Knew

My sweet Nana died of cancer almost a year ago from this week. She was one of the first people I asked to pray and consider the growth Hormone for CoCo from the beginning. She knew he would get them and had confidence that God was faithful. Let me clarify that Gods faithfulness is constant with or with out Growth Hormones or dying of cancer. God loves me and my family when things are great and all I have needed He has provided but he loves me and is faithful when things do not turn out as I plan also. As Natalie Grant sings " who told us we'd be rescued?, why should we be saved from sorrow...this is how it feels to be held, how it feels when the sacred is torn from our lives and you survive..."
And so I have survived, to miss my Nana and see my Pop change from her loss. I've let dreams of my "perfect" family go and seen new ones form. Today was bitter sweet because with the good news that Coleman is growing, I missed her all over again. Because I felt jipped that she wasn't here to hear my news,selfish I know. I am comforted that maybe she knows CoCo and I are doing great and that her prayers to God were everything to me.
I smiled today in a knowledge that she knew, Nana knew everything would work out. She was always calm when I was panicky or faithful when I was unsure but today my faith in God increases, not because of Coleman growing but because I am growing in Christ.