Today was picture day at school. Like most pictures we have taken I was stressed out!, and Coleman was ticked off at what he was wearing. He is still little so I put him in one of Carters one piece sailor suits he had worn at 7 months old. He was adorable but it did look a little babyish for an almost four year old, mistake on my part. When we got to school one of his class mates said "look at his cute little legs". She did not mean anything by it but he ran to his bag and got a pair of pants and immediately put them on. We couldn't leave the pants on for the picture, but for his sake I left the pants on till the last second and we got a beautiful picture. Poor thing gets that all the time.
Then the next day at swimming lessons some other girl about 3-4 years old said the cuss word in our house "BABY". He looked at me and as I rolled my eyes he smiled at me. Maybe he does understand a little that they just don't know how old he is or even understand how it hurts him and me to hear common phrases.
Hi Kristen, my name is Geani, I have a 3 1/2 year old boy with hypochondroplasia, his name is Kevin, I'm glad I found your blog,It is hard to find informantion in the internet for hypo. Coleman is a very handsome boy, God bless him
ReplyDeleteGeani,If you have any questions I'll try to answer to the best of my abilities. Its been a long learning process
ReplyDeleteHi Kristen! My name is Andrea and I just found your blog while doing a random hypo google search (checking to see if there is any new info out there). I look forward to following your blog. My son, Evan has hypochondroplasia. He'll be 5 in a few weeks. He's happy and healthy and about the same size as his almost 3 year old sister!
ReplyDeletekeepingupwiththekunzs.blogspot.com
Do you mind if I link your blog to mine? I have a dwarfism section that I have hypo links on.
I do not mind at all if you link my blog to yours. I already follow your blog. I love seeing what everyone is going through
ReplyDeleteHi Kristen! I'm excited to get in touch with other moms of kids with hypo! Your boys are adorable!
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteHey Kristen I am Brazilian my name is Fatima and the mother of John Peter he is 6 years and 5 months and has hipocondroplasia I learned of the blog by Coleman Geani mother of Kevin, and I saw that Coleman uses growth hormone, my son started to use hormone on December 29, 2008, so it has 1 year and 2 months it takes hormone in the first year it grew by 6 cm, was a very good result, Coleman is very beautiful hugs
ReplyDeleteFatima, I would love to talk to you more about the results of the growth hormone and what the doctors said about his successes. I would also like to know if it was a shot or a pill? How is he doing in school? You are the first person I have talked to that has been through the growth hormones also. I am so excited right now! Do you have email or a blog where we could talk more? What part of Brazil are you from, I have relatives that have lived there most of their lives.
ReplyDeleteSooo nice to hear from you.
Kristen
Kristen my email is (fatima.ribeiro1 @ hotmail.com) send your e-mail too, my son takes shot every night to sleep, in the package says it has to be at the same time, then 10 pm he takes the hormone injection, he entered the school with 2 years and 5 months, this year he changed schools because it was for the 1st grade, he is very smart, is already reading and writing very well ... I live in Vitoria-ES, almost forgot to say is 1 / 2 ml John Peter takes hormone, March 11, he has returned to an endocrinologist and every 6 months do tests to see if it's alright, I am willing to exchange mos-ideas
ReplyDeletehugs
I found your blog from a link on Andrea's blog. I have 3 boys. My youngest is going through testing now to find out why he is so small. He is 28 months and is the size of a 1 year old. I am happy I found your blog. Thank you for the info. I will be back to visit. My blog which I dodn't do a good job of updating is www.oursunshineboys.blogspot.com. We went to an endrocinologist today. She had us do some bloodwork, a hand xray and referred us to a geneticist.
ReplyDeleteYOU GUYS HAVE VERRRRRRRY CUTE KIDS. MY DAUGHTER IS VERY CUTE AS WELL. I ENJOY READING ABOUT THIS CONDITION AND HOPE TO HEAR MORE ABOUT THE GROWTH HORMONE. FROM WHAT I HEARD IS THAT THERE WAS NOT A GROWTH HORMONE TO GIVE FOR HYPOC. I LIVE IN ALASKA AND FOUND OUT ABOUT MY DAUGHTER WHO MIGHT HAVE THIS. WE HAVE DONE A LOT OF TESTING AND IS GOING TO SEE A GENETIC CLINIC AS WELL. WHAT SHOULD I EXSPECT FROM THE GENETIC CLINIC. DO THEY HAVE A LOT OF USFULL INFO?
ReplyDeleteTHANK YOU ALL FOR SHARING YOUR INFO.
Hi Kristen,
ReplyDeleteMy name is Charity, and my son has Hypo as well. His name is Christopher (Topher for short) and he is 9 years old. We have seen many doctors over the years, but to date have had no complications. Some things we have addressed are speech delay (very common in hypo), and minor learning issues (I now homeschool him). We did not do growth hormone therapy with Topher because he wasn't deficient in any hormones and it would have been for experimental purposes. I know other families that did do hormone therapy, but the results were very minimal and there are side effects of hormone therapy. Socially, we have dealt with a few issues, like the ones you addressed above. Because children with Hypo don't have disproportion like some of the other dwarfism's, I notice people are terribly confused. When we put Topher in public school, I sent a letter to the teacher, with copies that were sent home to the children's parents. I addressed/ educated everyone about Little people and social correctness with my son. This was so positive for everyone, and many parents thanked me later. (They knew nothing about LP) This also helped the children that were in his class to have a better understanding. Unfortunately, I had to bring him home because it was the children in the lunch room and recess calling him MIDGET, that did him in.
I encourage any parent of a little person that reads this to join the LPA (little people of America). They have so much information that was not available 9 years ago. It is a great support system for LP's and their families. We attend the functions regularly, and there are local chapters so that you don't have to travel far. The older your children get, this becomes necessary so they don't feel isolated. Christopher is very outgoing, plays baseball, and has many friends who love him, but as the years have gone by he looks forward to seeing his LP friends more and more. If anyone has questions that you think I may be able to help with feel free to contact me at sunshinee4@hotmail.com. Also, my daughter has OI, so I know quite a bit about that too. LOL!
Let me close with this. I'll never forget the first time my son asked, "Why did God make me small?" This is what the Lord gave me 1 Samuel 16:7.
But the Lord said to Samuel, "Do not consider his appearance or his height, for I have rejected him. The Lord does not look at things man looks at. Man looks at the outward appearance, but the Lord looks at the heart."
Be Blessed Ya'll.
Hi Kristen, My name is Thera and i have a daughter that has hypo and she seems to be doing good. She has breathing problems,she sounds like she always has a cold. We had her adnoids out at about 7months. I love seeing pic of your kids they are adorible. I would love to hear more about how your child is doing and about the growth hormones. The androconoligist told us there was not any growth hormones for hypo. So i am interested in haring more about it. Thansk for all your info and web site i love the fact that i can talk to people about this. I love that you are a christian too. That is good to know. I have been telling people that God made my daughter the way he wanted to and i am glade it is not somthig worse than what it is. It could always be worse. I am taking the new well but do not think my husband is.
ReplyDeleteHope to keep in touch
Thera
oh can i follow your blog and how do i do it. thanks
Hi Kristen, I am the mother of Fatima Joao Pedro has hipocondroplasia we are Brazilians, remember me? Yeah I was reading in his anonymous blog that is 31 years old and has hipocondroplasia and who married last year, would love to know the stature he arrived, as you have to contact him or if he read my message this able to answer that question? Hugs, God be with
ReplyDeleteHI Kristen, so nice to read your blog. In all my websurfing about hypo, there's more scientific stuff than personal, so hooray to you. My daughter Hannah is 11 and has hypo. She's starting to feel really isolated - we live in Sydney, Australia and only know one other child with hypo. He's a lovely boy but I'd really love to find Hannah a female penfriend she can e-mail when she's fed up with dealing. Do you know anyone with a girl in similar age bracket? (Hannah will be 12 in October). Your family looks wonderful and I look forward to chatting with you again soon. My e-mail is anita@anitasong.com if you need to get in touch.
ReplyDeleteI actually do not know anyone in our area with hypochondroplasia, so its cool to know that your daughter can see others like her. I only know the ones on my page but most are young. If I hear anything Ill let you know.
ReplyDeletemy email is randomkcv@yahoo.com but I don't check it very well. I have facebook that I keep up with
hi im a 25 year old female with hypochodroplasia, my daughter who is nearly 2 also has it, just want to say keep up the good work on this blog,just really want to know does your child have any breathing problems?? if any other mums or dad want any advice heres my email tarah.larkowsky@live.co.uk as ive been there myself growing up, xx
ReplyDeleteHe had had breathing problems. We just got his adnoids removed again and his tonsils out on Friday. He had bad sleep apnea and reflux.When he was younger it was worse and we had a nebulizer, albuterol and antihisimines
ReplyDeleteHi, what gorgeous photographs. You really have lovely children. I have a son and a daughter. My son is 4 and has hypochondroplasia. My husband does too. He is 4'11". I have never taken my son to the doctor about his height. Why medicalize a condition that doctors can do nothing about? I feel it's more important to help my son love and accept himself the way he is. My husband was dragged to loads of doctors when he was a kid and he hated it. In the end he declined the offer of growth hormone when he was a child in the 60ies and a good thing too because if he'd taken it, he would probably have contracted that awful brain disease CJD you get from contaminated beef (they use cows brains to make human growth hormone).
ReplyDeletehi my little man is 14months and been diagnosed with hypochondroplasia i am still taking it all in but must say your blog is the first nice thing i have read.. thanks for sharing coleman is a such a trooper. I am in Australia but I am really interested in the growth hormone and study and seeing what my options are in australia. Let me know if lt would be ok for and email or chat thanks for sharing your story definaltely made me feel a bit better ...
ReplyDeleteHi there,
DeleteI just read your comment, my daughter has just been diagnosed with Hypochondroplasia, she is 15 months old. I realise your post is from some years ago but i'd just be interested to hear how you guys are getting along? We are located in Melbourne. I am only in early stages of trying to determine what sort of support services are available. My email is kelsey163@gmail.com
I hope you and your boy are doing well. :)